Support Workers, Get Off Your Cellphones!

I heard it numerous times from parents about how much it bugs them that the damn workers are always on their cellphones and neglecting their special-needs kids. I will confess it's also a sin that I have been guilty of. For support workers, the cellphone will always be that glittering apple leading them into temptation. For me, the scenario will play out like this...

I am at the field-house at Variety Village with Johnny as we wait for the equipment staff to return so we can get a basketball. Johnny is desperately tugging a me, desperately attempting to break my restraint so he can bolt into the equipment room for the basketball. After what seems like an eternity the staff returns and hands us a ball.

We are now on the court. Johnny shoots, misses, and then slams the ball in frustration as he flops to the floor. He will have no more despite my pleading to continue. I then suggest we skip the sports and head to the pool for swimming. He agrees.

We get to the pool area and he won't enter the change-room. He changed his mind. More begging from me but he won't budge. He settles instead to watch the swimmers from the glass doors, but this is pitifully brief. He has now rushed the lifeguard quarters and I must get him out of there.

We return to the field-house to try biking around the tracks. Forty-five minutes goes on with us circling the tracks and me commanding him to stay in his lane. Despite my barkings, there are still a few close calls with him almost running over other walkers.

Thankfully it is now lunchtime and we can head to the front for food. Food should occupy him!

We are now sitting a the table in the front and Johnny starts on his lunch. Oh yes, he is settled – and then there is that shinny, glittering apple in my jacket pocket!

Perhaps the temptation is fueled by the support work job not readily lending itself to breaks and escapes. Seriously, in most jobs after four hours of work you are entitled to a 15mins break for yourself. Or, is two hours?! Oh God – it has been such a long time since I had a normal job!

Anyway, a 15mins break for yourself and time away from your special-needs client is obviously not doable in the support work business. Often, a quick chat on the phone is the only feasible respite. Yes, support workers need respite too! As well, extended time with a non-verbal person can be such a lonely experience and creating quite a craving for normal conversations.

So, giving into temptation, I snatch the apple (actually an android!) from my jacket pocket and start yapping.

The 'release' instantly whisks my attention away into a state of Alice in Wonderland daze. Yet, just as quickly things are jolted back to reality but not by an, 'Alice! Wake up!' but by a, 'No! No! Elvis?! Johnny!'

Oh shit!! Johnny has pushed his way through the line, and he is now at the concession stand destroying it as he snatches chips. Staff-Jane is yelling for me as she desperately attempts to hold him off.

The quickest goodbye to my conversation party and I race for Johnny. In that split, I am thinking I

couldn't have been in Wonderland that long. How the hell did he teleport himself from sitting at the table so nicely and eating his lunch to now terrorizing Jane?! My resolve grows that autistic kids have supernatural abilities; supernatural shit disturbing abilities.

I rescue Johnny – or more, Jane! -- but by then the commotion has everyone's attention and I see all the disapproving looks. I am the most worthless flesh to ever try to pass as a person. There I am yapping on my phone while my mentally disabled client is destroying the place. Oh God!, not another sit-down with program manager-Evelynne about how I must do a better job watching my guys.

The disapproving looks and sit-downs with Evelynne are bad enough, but serious reflections over the years has led me to settle on another prime reason to limit my cellphone use while I am with my guys. That is the appreciation of just how emotionally needy special-needs individuals are and how they crave our constant attention.

Many may think that the particularly difficult aspects of supporting special-needs individuals involve looking after their behavioural, physical or even personal care challenges. Indeed, those things are difficult, but I would say it's the emotional neediness that is the most challenging. In fact, I would argue it's the emotional neediness and their inability to self-regulate that give rise to the other challenges. Special-needs individuals constantly need us to help them self-regulate from all the stressors and temptations around them.

Comparing my clients to my own kids, I am sure my girls love me but on just about every occasion I could walk into the living room and instantly combust in a ball of flames and I doubt they would notice. If they are on their screens they may merely complain about how all of a sudden it's so hot in the room and ask their mom if the AC is working. They don't need me as much.

So, support workers, if you are listening, let's resist the apple and put our clients ahead of everything else. Please get off your cellphones!